Abstract
Background: Efforts to combat tuberculosis in Nigeria focus on evaluation of strategies for treatment and prevention, with little attention paid to the impact of the burden of illness and its therapy on the HRQoL of TB patients. This study evaluated the quality of life (QoL) of TB patients in relation to their financial, psychological and social well-being. Method: In 2011, following an active case finding for TB in Akwa Ibom State of Nigeria, a structured questionnaire for evaluating HRQoL was distributed to TB patients who had been on treatment in four DOTs centres of the state for at least three months. The questions were to elicit responses that conveyed the respondents’ perspective of the disease. One hundred and eight TB patients (54 males and 54 females) aged 15 - 80 years were studied. Results: Negative emotions including fear, frustration and worry characterized the reactions of all subjects following news of their diagnosis with TB. However, following treatment, 62% of subjects expressed high expectation of being cured. Inability to continue functioning in their roles at home or as heads of households was recorded in 48.1% (52/108) and 59% (23/39) of respondents respectively and contributed to the negative emotions expressed above. Lack of basic supplies such as food and finances to meet personal and family needs constituted the most important socio-economic challenges. Socio-economic status of respondents revealed that 61% had no regular means of income with at least 94% earning less than $50 (8000 naira) a month. Subsistent farmers and petty traders constituted more than 66% of the respondents: 98% obtained less than or equivalent of high school education. Socially, all health workers and 87% of family members were sympathetic and supportive compared to friends, with 42% exhibiting stigmatization. The most frequent forms of support from family members were financial (25%) and provision of food (37%). Up to 28% were regularly prompted by family to take their medication. Conclusion: In the midst of obvious socio-economic challenges confronting TB patients in this study, the initial negative emotions declined following the supportive roles of mainly health care workers and family members. Patients were optimistic of achieving cure at the end of the treatment.
Highlights
IntroductionIt has been seen that apart from physical symptoms, TB patients face various problems that are social and economic in nature
Tuberculosis is a disease with social implications due to the stigma attached to it
Following an active case finding of TB patients carried out in Akwa Ibom State of Nigeria in 2011, a structured questionnaire was administered to 120 patients undergoing Directly Observed Therapy short course (DOTS), out of which 108 (54 females and 54 males) responded
Summary
It has been seen that apart from physical symptoms, TB patients face various problems that are social and economic in nature. The impact of any disease, especially a chronic illness like tuberculosis, on an individual patient is often all-encompassing, affecting his physical health and his psychological, economic and social well-being [2]. Efforts to combat tuberculosis in Nigeria focus on evaluation of strategies for treatment and prevention, with little attention paid to the impact of the burden of illness and its therapy on the HRQoL of TB patients. Method: In 2011, following an active case finding for TB in Akwa Ibom State of Nigeria, a structured questionnaire for evaluating HRQoL was distributed to TB patients who had been on treatment in four DOTs centres of the state for at least three months. Subsistent farmers and petty traders constituted more than 66% of the respondents: 98% ob-
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