Abstract
Six home care services in Southern Ireland collected data on a total of 757 patients over a 6-month period. Patient and family well-being were measured using the staff-rated Support Team Assessment Schedule and Karnofsky Index. Five hundred and eight patients died while in care, 75% of whom died at home. At referral, 32% of families were rated as having severe or overwhelming anxiety. During the last week of care, anxiety remained severe for 26% of family members. Patient and family well-being were inter-related, and there were significant interactions between family anxiety and patient physical and psychological symptoms, and communication. Discriminant analysis produced two predictive models. In model 1, family anxiety at referral strongly predicts family anxiety in the last week of life. In model 2, family anxiety at referral is excluded from the analysis, and the significant predictor factors at referral for family anxiety in the last 4 weeks of life are patient symptom control, sex of patient, diagnosis and patient age.
Highlights
This study aimed to examine the characteristics associated with family anxiety in the weeks before the death of a loved one
Most people were at home at the time of referral (73%); 20% were in hospital, 1% in a hospice and 2% in British Journal of Cancer (1997) 76(9), 1211-1214
Most carers (87%) had normal physical functioning according to the Karnofsky Index, and only a small number had some sign of illness or required assistance
Summary
This study aimed to examine the characteristics associated with family anxiety in the weeks before the death of a loved one
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