Exploring Emotions and Perceptions of Pediatric Nurses Regarding End-of-Life Care for Children.
Interacting with dying children is one of the most challenging aspects of nursing. Nurses' emotions and perceptions while caring for children at the end of their lives could influence the quality of care provided. To investigate emotions and perceptions of pediatric nurses regarding end-of-life care of children. 170 pediatric hospital nurses completed a self-reported questionnaire that consisted of questions to collect information related to sociodemographic characteristics as well as questions regarding previous training in the care of dying patients, previous experience in the care of these patients, and, more generally, previous experience with issues related to death. 68.6% of participants reported being greatly affected by a child's death, mainly feeling sadness/distress (44%), compassion (22%), guilt (22%), and anger (22%). 44.7% felt unprepared to handle death. 73% wished the child would die in their absence, 62.8% believed family care should continue during grieving, while 70.6% felt nurses should join psychological support groups. Integrating death and end-of-life care concepts into nursing education and practice could enhance the quality of end-of-life care for patients and families.
- Front Matter
- 10.1016/j.outlook.2008.05.003
- Jul 1, 2008
- Nursing Outlook
Guest Editorial: Response to “Preserving today with an eye on our future”
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- 10.1016/j.pedn.2025.03.015
- May 1, 2025
- Journal of pediatric nursing
Perceptions of pediatric nurses by mothers of children with hospitalization experience: A qualitative study.
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8
- 10.1016/j.pedn.2005.03.002
- May 1, 2005
- Journal of pediatric nursing
Health Care Quality and Outcome Guidelines for Nursing of Children and Families
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4
- 10.1016/j.pedn.2014.08.008
- Aug 20, 2014
- Journal of Pediatric Nursing
The Pediatric Bill of Rights
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22
- 10.1016/j.pedn.2013.02.023
- Mar 6, 2013
- Journal of Pediatric Nursing
The Essence of Pediatric Nursing—Translating Evidence to Improve Pediatric Nursing Care for Children, Their Parents and Families
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- 10.1016/j.pedhc.2006.10.005
- Dec 30, 2006
- Journal of Pediatric Health Care
PII: S0891-5245(06)00683-3
- Front Matter
2
- 10.1016/j.pedn.2012.10.002
- Nov 8, 2012
- Journal of Pediatric Nursing
Change Is Coming
- Research Article
- 10.2478/fon-2025-0019
- Jun 1, 2025
- Frontiers of Nursing
Objective This article employs a scoping review methodology, integrates knowledge and information about current pediatric nurses' practices and perceptions regarding family-centered care in pediatric settings. Methods Published articles were retrieved from databases including EBSCO host, PubMed, Springer, Science Direct, Ovid, and CINAHL between 2013 and 2023. Results The finding shows a better understanding of pediatric nurses' perceptions of family-centered care in association with their clinical settings. However, the evidence indicates that integrating family-centered care components into health care services is difficult and confusing to nurses and is often not implemented in a clinical setting. As evidenced by this review, studies have consistently reported similar results; family-centered care was a good perception and understood by pediatric nurses as a concept but inconsistently used in a daily practice setting. Conclusions This scoping review is the first phase in promoting a strategic plan to provide educational interventions for pediatric nurses to implement family-centered care in their daily practice settings. It's necessary to recognize pediatric nurses' perceptions and practices concerning family-centered care to provide optimal healthcare services in pediatric settings.
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7
- 10.1002/j.2379-3988.1998.tb00037.x
- Jun 1, 1998
- Social Policy Report
Investigating Child Care Subsidy: What Are We Buying?
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63
- 10.1016/j.pedn.2017.05.003
- May 30, 2017
- Journal of pediatric nursing
SPN Position Statement: Transition of Pediatric Patients Into Adult Care
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31
- 10.5664/jcsm.7488
- Nov 15, 2018
- Journal of Clinical Sleep Medicine
Sleep is critical to a child's health and well-being, but children are likely to sleep less and be awakened more often during the night in the hospital than at home. To date no studies have compared caregiver, nurse, and physician perspectives of nighttime sleep disruptions in the pediatric general medicine setting. Our aim was to assess caregiver, nurse, and physician perspectives on the most frequent in-hospital disruptors of sleep for pediatric patients. Additionally, we evaluated the degree of agreement of those opinions between the caregivers and medical team. Caregivers, nurses, and physicians were surveyed using the Potential Hospital Sleep Disruption and Noises Questionnaire (PHSDNQ) regarding their opinions on factors that disrupt sleep. Caregiver responses were collected via a convenience sample of patients hospitalized from February to August 2017 and hospital staff was surveyed once regarding overall perception. The perceived percentage of patients disrupted by each factor was calculated and compared among groups using chi-square tests. Using caregiver rank order based on mean response as the reference gold standard, the absolute differences of nurse and physician rank orders were summed and analyzed using a two-sample test of proportion. In addition, staff was asked knowledge and empowerment questions about how to maximize patient sleep in the hospital and responses were compared using chi-square tests. A total of 162 caregivers, 77 nurses (84% response rate), and 81 physicians (90% response rate) completed surveys. Checking vital signs (50%), nurse/physician interruption (49%), and continuous pulse oximetry (38%) were the three most prevalent disruptors of pediatric inpatient sleep as reported by caregivers. Significant differences were observed between caregiver, nurse, and physician responses for pain, anxiety, alarms, noise, and tests (P ≤ .001 for all). Both nurse and physician rank orders were discordant when compared to caregivers; there was no significant difference between the two staff groups. When compared to physicians, nurses reported doing more to help children sleep in the hospital (33% versus 94%, P < .001). Although caregivers report medical interventions such as checking vital signs, nurse/physician interruption, and continuous pulse oximetry as the most frequent disruptors of inpatient pediatric sleep, pediatric staff has poor insight into these disruptions.
- Research Article
14
- 10.11124/01938924-201210570-00006
- Jan 1, 2012
- JBI library of systematic reviews
Review question/objective The objective of the review is to synthesise the existing evidence on family and/or health providers’ experience of family-centred models of care for hospitalised children aged 0-12 years (excluding premature neonates). (*Some sections of this protocol are adopted or adapted from the Cochrane Systematic Review of family-centred care in hospitalised children 0-12 years (2007)1 and its update (2012)2 and are published here with permission from Wiley. A more detailed discussion of the development of the concept of family-centred care is available in these publications.) This review will consider studies that include hospitalised children aged 0-12 years (but excluding premature neonates), their family and/or health providers. Definitions Child/children: throughout this review, the term 'child' or 'children' is used to include all newborn infants, babies and children up to the age of 12 years being cared for in hospital; and all parts of hospitals that provide a service to children. The definitions of childhood can vary, and age limits are arbitrary. For the purpose of this review the National Library of Medicine's medical subject headings were used to define the age cut off of 12 years. However, we have excluded neonates born prematurely and who are patients in a neonatal intensive or special care nursery, as their requirements for family-centred care, and the ethics and philosophies of care around this particular group, are different to those in a ward/unit where full term infants and children are nursed.40 We have excluded studies about adolescents for similar reasons. Families: throughout the review the following definition of the family will be applied: The family is a basic social unit having as its nucleus two or more persons, irrespective of age, in which each of the following conditions are present: the members are related by blood, or marriage, or adoption, or by a contract which is either explicit or implied;the members communicate with each other in terms of defined social roles such as mother, father, wife, husband, daughter, son, brother, sister, grandfather, grandmother, uncle, aunt; and they adopt or create and maintain common customs and traditions. TRUNCATED AT 350 WORDS
- Front Matter
- 10.1016/j.pedn.2017.07.008
- Sep 1, 2017
- Journal of Pediatric Nursing
An Integral Component of Pediatric Nursing Practice
- Front Matter
- 10.1016/j.pedhc.2007.12.010
- Feb 20, 2008
- Journal of Pediatric Health Care
Our Unified Scope and Standards of Practice
- Research Article
1
- 10.5216/ree.v16i1.29266
- Mar 31, 2014
- Revista Eletrônica de Enfermagem
Thaila Correa Castral, Mariana Firmino Dare, Carmen Gracinda Silvan Scochi 1 Enfermeira, Doutora em Ciencias. Professora Adjunto I da Faculdade de Enfermagem da Universidade Federal de Goias. Goiânia, Goias, Brasil. E-mail: thaccastral@gmail.com. 2 Enfermeira. Doutoranda do Programa de Pos-Graduacao Enfermagem em Saude Publica Escola de Enfermagem de Ribeirao Preto da Universidade de Sao Paulo (EERP/USP). Bolsista Regular de Doutorado Direto FAPESP. Ribeirao Preto, Sao Paulo, Brasil. E-mail: mari_dare@hotmail.com. 3 Enfermeira, Livre-Docente. Professora Titular do Departamento de Enfermagem Materno-Infantil e Saude Publica da EERP/USP. Bolsista Produtividade em Pesquisa 1B do CNPq. Coordenadora da Area de Enfermagem na CAPES. Ribeirao Preto, Sao Paulo, Brasil. E-mail: cscochi@eerp.usp.br.
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