Evaluating the effectiveness of an online group programme to manage Multiple Sclerosis-related fatigue

Abstract

Background and aim: A group-based fatigue management programme called FACETS has typically been delivered face-to-face to people living with MS within a neuropsychology service. In response to Covid-19 government guidelines, this service adapted to online delivery of their fatigue management group intervention. This study aims to evaluate two FACETS group interventions which were delivered online consecutively within this service. Methods: Group 1 was delivered face-to-face for the first three sessions before being adapted for virtual delivery for the final three sessions. Group 2 was delivered virtually for all six sessions. Quantitative data was collected from outcome measures collected pre -and post-group. Qualitative feedback was gathered to explore participants’ experience of the group as well as the adapted virtual delivery. A thematic analysis was undertaken to identify key themes.Results: Participants in both groups felt they had more control over managing their fatigue and it was having less of an impact on their quality of life. Five themes were identified from participants’ qualitative feedback (knowledgeable content, awareness and learning, validating experience, accessible amendments, patient choice). Discussion: Feedback was largely positive from both groups following the adaptation to online delivery as it offered a cost- and time-effective solution. Participants reflected on the value of a mixed delivery option for future group interventions to facilitate rapport with other participants and empower self-management of their fatigue. Keywords: MS-related fatigue, online support, quality of life, patient choice.