Abstract
The National Institutes of Health has a longstanding history of supporting research in Down syndrome (DS). In 2013, the online DS-Connect patient registry was launched to connect individuals and families with research project of interest to them. A professional portal was launched in 2014 that allows researchers to view the aggregate, de-identified registry data to help in designing research projects and for assistance in recruitment for their clinical studies after review by the Research Review Committee (RRC).
Sign-in/Register to access full text options 
Talk to us
Join us for a 30 min session where you can share your feedback and ask us any queries you have
Schedule a callDisclaimer: All third-party content on this website/platform is and will remain the property of their respective owners and is provided on "as is" basis without any warranties, express or implied. Use of third-party content does not indicate any affiliation, sponsorship with or endorsement by them. Any references to third-party content is to identify the corresponding services and shall be considered fair use under The CopyrightLaw.
