Abstract
Aim: To describe the development and outcomes of a rehabilitation intervention for persons with Parkinson’s and their near-ones. Material and methods: Customer-understanding-based intervention development; and a pilot study: a random sample of persons with PD (n=18) and their near-ones (n=7) were divided into subgroups: Persons with PD, Gym rehabilitation; Persons with PD, Home rehabilitation; Near-ones, Gym rehabilitation; Near-ones, Home rehabilitation. Data included clinical measurements, scores from a PDQ-39 questionnaire and a simple diary, analyzed with descriptive statistics. Results: The PISER intervention was established to be feasible in relation to study and data collection procedures, outcome measures and to recruitment of persons with PD. After the eight-week intervention, both Persons with PD subgroups and Near-ones in Gym group had better clinical outcomes and better emotional, social and communicative health-related quality of life. Near-ones, Home rehabilitation had marginally poorer clinical outcomes, but still reported better cognitive well-being. Conclusions: The PISER intervention was shown to be feasible. By engaging in systematic physical activity, persons with PD and near-ones maintained or developed their functional capacity, psychosocial well-being and certain aspects of health-related quality of life. An eight-week rehabilitation intervention had a positive impact on self-management, especially in gym-groups, in which the participants enjoyed the social aspects of group rehabilitation and received individual instruction and feedback during physical activity. This kind of person-centered, systematic physical activity intervention may prevent inactivity and fall risks, and delay onset of activity limitations. It is vital that healthcare professionals and clients with PD together analyze and discuss the meaning of physical activity and self-rehabilitation.
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