Abstract

Objective:Multi-organizational research requires a multi-organizational data quality assessment (DQA) process that combines and compares data across participating organizations. We demonstrate how such a DQA approach complements traditional checks of internal reliability and validity by allowing for assessments of data consistency and the evaluation of data patterns in the absence of an external “gold standard.”Methods:We describe the DQA process employed by the Data Coordinating Center (DCC) for Kaiser Permanente’s (KP) Center for Effectiveness and Safety Research (CESR). We emphasize the CESR DQA reporting system that compares data summaries from the eight KP organizations in a consistent, standardized manner.Results:We provide examples of multi-organization comparisons from DQA to confirm expectations about different aspects of data quality. These include: 1) comparison of direct data extraction from the electronic health records (EHR) and 2) comparison of non-EHR data from disparate sources.Discussion:The CESR DCC has developed codes and procedures for efficiently implementing and reporting DQA. The CESR DCC approach is to 1) distribute DQA tools to empower data managers at each organization to assess their data quality at any time, 2) summarize and disseminate findings to address data shortfalls or document idiosyncrasies, and 3) engage data managers and end-users in an exchange of knowledge about the quality and its fitness for use.Conclusion:The KP CESR DQA model is applicable to networks hoping to improve data quality. The multi-organizational reporting system promotes transparency of DQA, adds to network knowledge about data quality, and informs research.

Highlights

  • Continuous maintenance and assessment of data in a distributed network ensures high quality, consistent, and easy to use data [1,2,3,4,5]

  • Since all available sources are considered for building the virtual data warehouse (VDW) death data, issues related to data linkage and completeness are important factors in assuring data quality

  • The Center for Effectiveness and Safety Research (CESR) VDW builds upon the Health Care Systems Research Network (HCSRN) VDW [9] and supports its ongoing development

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Summary

Introduction

Continuous maintenance and assessment of data in a distributed network ensures high quality, consistent, and easy to use data [1,2,3,4,5]. One of the complications of assembling such a large data resource is that the information on a single encounter or event may be found in multiple sources in each health system—electronic health records (EHR), claims data, membership data, coverage and benefits, patient registries, disease registries, pharmacy, birth and death certificates, and other internal sources. Each of these sources captures a specific footprint of the patient in the health care system. The methods and frequency of data collection through EHR at different organizations is key to understanding the underlying data

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