Abstract
BackgroundSurvivorship care plans (SCPs) are intended to facilitate communication and coordination between patients, oncologists, and primary care providers. Most SCP initiatives have focused on oncology providers initiating the SCP process, but time and resource barriers have limited uptake.ObjectiveThis trial compares the feasibility and value of 2 Web-based SCP tools: provider-initiated versus patient-initiated.MethodsThis mixed-methods study recruited clinicians from 2 academically-affiliated community oncology practices. Eligible patients were treated by a participating oncologist, had nonmetastatic cancer, completed acute treatment ≤ 2 months before enrollment, and had no evidence of disease. Patients were randomized 1:1 to either provider-initiated or patient-initiated SCPs—both are Web-based tools. We conducted qualitative interviews with providers at baseline and follow-up and with patients 2 months after enrollment. In addition, patients were administered the Preparing for Life as a (New) Survivor (PLANS) and Cancer Survivors’ Unmet Needs (CaSUN) surveys at baseline and 2 months.ResultsA total of 40 providers were approached for the study, of whom 13 (33%) enrolled. Providers or clinic staff required researcher assistance to identify eligible patients; 41 patients were randomized, of whom 25 completed follow-up (61%; 13 provider-initiated, 12 patient-initiated). Of the 25, 11 (44%) had initiated the SCP; 5 (20%) provided the SCP to their primary care provider. On the Preparing for Life as a (New) Survivor and Cancer Survivors’ Unmet Needs, patients in both arms tended to report high knowledge and confidence and few unmet needs. In qualitative interviews, providers and patients discussed SCPs’ value.ConclusionsRegardless of patient- versus provider-initiated templates and the Web-based design of these tools, barriers to survivorship care planning persist. Further efforts should emphasize workflow functions for identifying and completing SCPs—regardless of the SCP form used.Trial RegistrationClinicalTrials.gov NCT02405819; https://clinicaltrials.gov/ct2/show/NCT02405819 (Archived by WebCite at http://www.webcitation.org/6jWqcWOvK)
Highlights
Johns Hopkins Bloomberg School of Public HealthTitle of your manuscript * Provide the (draft) title of your manuscript
Does your paper address CONSORT subitem 4a? * Copy and paste relevant sections from the manuscript, or elaborate on this item by providing additional information not in the ms, or brieoy explain why the item is not applicable/relevant for your study https://docs.google.com/forms/d/1KlxFl4iTrxRIWADX-jCukJwHv4...hl=en_US&formkey=dGlKd2Z2Q1lNSGQ0THl1azM5MS1aWWc6MA&rm=full "Patient eligibility was not, limited to breast, prostate and colorectal cancer; patient participants were recruited through the participating clinicians, and were adults (21 years and older) diagnosed with any non-metastatic cancer."
The hypotheses Journey Forward collaboration has developed both the “Survivorship Care Plan Builder” and “My Care Plan” web-based templates, and has made these tools freely Daoveasilyaoblueropnalipner. aItdidsraelssso CpoOsNsiSbOleRtTo psruinbtittehme fo2rbm?s*and fill them out Cobpyyhaanndd.p"aste relevant sections from the manuscript, or elaborate on this item by providing additional information not in the ms, or brieoy explain why the item is not applicable/relevant for your study
Summary
Title of your manuscript * Provide the (draft) title of your manuscript. A Randomized Controlled Trial Comparing Web-Based Provider-initiated and Patient-Initiated Survivorship Care Planning for Cancer Patients. Article Preparation Status/Stage * At which stage in your article preparation are you currently (at the time you Ull in this form) not submitted yet - in early draft status not submitted yet - in late draft status, just before submission submitted to a journal but not reviewed yet submitted to a journal and after receiving initial reviewer comments submitted to a journal and accepted, but not published yet published. Other: Journal * If you already know where you will submit this paper (or if it is already submitted), please provide the journal name (if it is not JMIR, provide the journal name under "other"). Not submitted yet / unclear where I will submit this Journal of Medical Internet Research (JMIR) Other: JMIR Cancer
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