Community-based participatory health research: principles and practice

Abstract

Abstract Community-based participatory research (CBPR) is a collaborative approach to research that aims to improve the health of marginalized communities and reduce health disparities. It starts with a topic of concern for the community and involves iterative cycles of action and reflection to initiate change. Community members are involved as partners and trained as peer researchers to take an active role in the research process. Processes of capacity building and empowerment play a prominent role. As a general principle, participatory research does not primarily focus on health problems, but pays at least equal attention to the resources and capacities of communities. It places a strong focus on developing trust and reciprocity in research relationships. Regarding methodology, various empirical research methods are used in CBPR study designs, including qualitative, quantitative, mixed-methods and arts-based methods. Arts-based methods such as photovoice, digital storytelling, mapping and drawings facilitate the expression of lived experience, including sensitive aspects, through creative verbal and non-verbal means. These methods expand the available means of expression and as such are highly valuable in research fields where verbal communication is challenged by language barriers and diverse cultural backgrounds as well as sensitive topics and experiences. Participatory health research has been conducted with diverse migrant and refugee groups internationally. Due to legal and other reasons, refugees may be limited in their capacities for participation. The presentation will discuss the strengths and limitations of CBPR including structural obstacles to equitable partnerships.