Abstract
Registries which shall primarily support the enrollment in trials can be of a quite simple design, what should allow a rapid and large-scale setup with limited initial investment. High compliance and retention can get achieved with a “patient-powered” design that also addresses the need for feedback and interaction to/from and in-between the registered individuals. Modern IT technology should be applied to allow links into other similar registries and the integration of further data sources, such as biobanks, patient-reported outcomes, and data from patient’s smartphone.
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