Abstract
In February 1996, the genome community met in Bermuda to formulate principles for circulating genomic data. Although it is now 20 years since the Bermuda Principles were formulated, they continue to play a central role in shaping genomic and data-sharing practices. However, since 1996, “openness” has become an increasingly complex issue. This commentary seeks to articulate three core challenges data-sharing faces today.
Highlights
In February 1996, leaders in genome science convened in Bermuda and penned principles for circulating genomic data that endure today [1]
Motivated in part by an attempt to keep the human genome sequence in the public domain, the Bermuda Principles inaugurated a commitment to openness at the heart of the new field of genomics [Fig 1]
The hypothesis at Santa Cruz was that revisiting the historic Bermuda Principles would clarify what is at stake in today’s decisions about how and whether to share data, with whom, and on what platforms
Summary
In February 1996, leaders in genome science convened in Bermuda and penned principles for circulating genomic data that endure today [1]. Motivated in part by an attempt to keep the human genome sequence in the public domain, the Bermuda Principles inaugurated a commitment to openness at the heart of the new field of genomics [Fig 1]. Two decades after the meeting in Bermuda, on November 18, 2015, some original members of the Bermuda meetings, along with other genome scientists and social scientists, gathered at University of California Santa Cruz to reflect on what ‘open genomics’ means in the context of the post-HGP conditions: the exponential growth of genomic data, the centrality of private funding, and commitment to the right of privacy [2].
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