Abstract
Awareness of Sickle Cell Status among Adolescents and Caregivers in an Inner-City Community Hospital
Highlights
Despite universal newborn screening available in the United States, babies with sickle cell disease (SCD) are often born to parents who did not know they had sickle cell trait (SCT) before pregnancy
There was no statistical difference in SCT status knowledge between respondents who reported being born in the United States or outside the United States Figure 2
A significant fraction (28%) of respondents were not aware of their SCT status among a population with significant sickle cell prevalence
Summary
Despite universal newborn screening available in the United States, babies with sickle cell disease (SCD) are often born to parents who did not know they had sickle cell trait (SCT) before pregnancy. The objective of this study was to assess the knowledge of SCD and SCT among adolescents and their caregivers in our community
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