Abstract
BackgroundThe Schizophrenia Caregiver Questionnaire (SCQ) was developed to assess the impact on caregivers of caring for patients with schizophrenia. The objective of this study was to develop a scoring algorithm for the SCQ, and evaluate its measurement properties.MethodsThe SCQ was administered to 358 caregivers of patients with schizophrenia included in the observational PATTERN study of stabilized patients with persistent symptoms of schizophrenia receiving outpatient care. SCQ item selection and creation of scores were based on exploration of item response distribution, factor analyses, and Rasch model. Construct validity, reliability, and ability to detect change of the SCQ scores were investigated.ResultsThe final questionnaire comprised a ‘Humanistic impact’ supra-domain composed of a global score and four subdomain scores (‘Physical’; ‘Emotional’; ‘Social’; ‘Daily life’), and eight other domain scores related to the caregiving role (‘Exhaustion with caregiving’; ‘Feeling alone’; ‘Patient Dependence’; ‘Worries for the patient’; ‘Perception of caregiving’; ‘Financial dependence of the patient’; ‘Financial impact of caregiving’; ‘Overall difficulty of caregiving’). Two items from the SCQ were deleted. SCQ scores showed very good construct validity: Item convergent/discriminant validity were satisfactory; SCQ scores of caregivers of patients with more severe symptoms were higher indicating more impact (p < 0.05 for all scores); SCQ scores were meaningfully associated with measures of schizophrenia severity (PANSS and PSP) and caregivers’ Health-Related Quality of Life (Medical Outcome Survey Short Form 36 items). The SCQ Humanistic impact supra-domain scores demonstrated very good internal consistency reliability (Cronbach’s alphas between 0.80 and 0.96) and test-retest reliability (Intraclass Coefficient correlations ranging from 0.75 and 0.87); Other SCQ domain scores showed lower but still acceptable reliability coefficients. SCQ scores clearly increased for caregivers of patients whose schizophrenia worsened.ConclusionsOverall, the 30-item SCQ demonstrated very good measurement properties supporting its relevance to comprehensively measure the experience of caregivers of patients with schizophrenia.
Highlights
The Schizophrenia Caregiver Questionnaire (SCQ) was developed to assess the impact on caregivers of caring for patients with schizophrenia
Populations A total of 385 caregivers were recruited in the PATTERN study and among them, 358 had SCQ data
Analyses revealed two distinct constructs assessed by the SCQ: ‘Humanistic impact,’ comprising the social, emotional, daily life and physical impact on the individual caregiver; and aspects related to the caregiving role, such as perceptions of the caregiver towards caregiving or financial aspects
Summary
The Schizophrenia Caregiver Questionnaire (SCQ) was developed to assess the impact on caregivers of caring for patients with schizophrenia. There has been a shift of care from psychiatric hospitals to outpatient treatment, community services, and informal caregivers. The impact of caregiving for a person with schizophrenia is a multidimensional concept, consisting of social, physiological, behavioral, functional, mental, medical and economic domains [6, 7]. Behavioral family management, psychoeducational family intervention, and family therapy have been shown to improve caregiver coping skills and reduce the impact of caregiving [8]. Magliano et al demonstrated that a psychoeducational family intervention contributed to improvements in caregivers’ experiences, especially in regards to coping with schizophrenia-related stigma [9]
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