Abstract

Advances in healthcare have improved the survival rates of children with serious health problems. Parents, relieved that their child is alive, often face the challenge of caring for a child with a chronic illness and must make healthcare decisions that have life-long consequences. Supporting parents through the decision-making process is a complex challenge for the advanced practice nurse. This article offers an original and dynamic decision-making assessment tool to help the advanced practice nurse provide effective evaluation and appropriate support for the parents. This "Handful of Questions" was created using a patient-oriented decision-making model by Pierce and the work of other decision-making researchers. The literature reviewed includes the topics of surrogate parental decision making and an examination of the relationship between the decision-maker and healthcare providers.

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