Abstract
Communication and decision making are critical to patient- and family-centered care, with potential to impact both physical and emotional health outcomes in patients with end-organ failure. Building upon the clinical case, difficult communication and medical decision making in pediatric and young adult solid-organ transplant will be discussed. Data gathered from international multidisciplinary transplant clinicians on communication practices specific to prognostication, transplant complications, and advance care planning will be presented. Opportunities for improvement in clinician communication practices in patients with end-organ failure abound. Data presented on adolescent and young adult preferences for their own involvement in healthcare communication, heart failure treatment, and end-of-life decision making are compelling. The case scenario and data presented emphasize the important clinical role and expertise of psychiatric care in the pediatric solid-organ transplantation population.
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