Обізнаність законних представників пацієнтів із дитячим церебральним паралічем про е-інструменти щодо контролю та моніторингу доступності лікарських засобів

Abstract

In October 2020, the Association of palliative and hospice care together with the Department of Organization and Economics of Pharmacy of Shupyk National medical academy of postgraduate education have conducted a survey on awareness of parents and relatives of seriously ill children with cerebral palsy (CP) about online tools for control and monitoring availability of drugs. The study found that the vast majority of parents and relatives of seriously ill children with cerebral palsy are unaware of this resource and do not use it to check the availability of drugs. The level of ignorance of parents in Kyiv and other regions is generally the same (around 95%). The survey of the administration of NGOs (8 respondents), which on the basis of their Statute provide activities to protect the rights and interests of children with cerebral palsy in these areas, have shown that most of them (6 respondents) also do not use e-tools in their activities. The Association of palliative and hospice care is planning educational work in this direction. The purpose of such activities should be capacity building and social mobilization of citizens. No conflict of interests was declared by the authors.